Developing a condition specific questionnaire on quality of life of ileal orthotopic neo-bladder (IOB) recipients

Starting date
February 1, 2008
Duration (months)
48
Departments
Culture and Civilisation
Managers or local contacts
Niero Mauro

Multidisciplinary and multi-center study (7 hospitals involved) for the development of a specific questionnaire for the assessment of the quality of life of patients with ileal bladder and topical orthopedics (Ileal Orthotopic Neo-Bladder IOB). The work of the group, which will also involve centers in other European countries in the future, will be divided into the following phases: 1) creation and selection of items; 2) drawing of the QoL questionnaire; 3) international adaptation; 4) Survey to test the psychometric properties of the instrument; 5) dissemination and planning of further research initiatives. Scientific Directors: M. Niero, Department of TeSIS - Sociology Section, University of Verona; S. Siracusano, Faculty of Medicine, University of Trieste

Project participants

Cristina Lonardi
Associate Professor
Mauro Niero
Temporary Professor
Research areas involved in the project
Società inclusive e pratiche di cittadinanza
SOCIOLOGY
Publications
Title Authors Year
A NEW PATIENT-REPORTED OUTCOME (PRO)QUESTIONNAIRE SPECIFIC FOR ILEAL ORTHOTOPICNEOBLADDER (IOB) RECIPIENTS: THE IOB-PRO Siracusano S.; Lonardi C.; Niero M.; Curti P.; Cerruto M.A.; Dal Moro F.; Ficarra V.; Signorello D.; Simeone C.; Brausi M.; Ciciliato S.; Lampropoulou N.;Visalli F. 2011
Developing a condition specific questionnaire on quality of life of ileal orthotopic neobladder (IOB) Lonardi C.; Siracusano S.; Niero M. 2010
Identificazione degli ITEMS nello sviluppo del questionario di valutazione della qualità di vita nei pazienti portatori di neovescica urinaria ortotopica Lonardi C.; Siracusano S.; Ciciliato S.; Lampropoulou N.; Visalli F.; Niero M.; Benedetto G.; Curti P.; Cerruto M.A.; et al. 2010
Item generation of a quality of life questionnaire specific for ileal orthotopic neobladder Siracusano S.; Lonardi C.; Niero M. 2010

Activities

Research facilities